--- title: What is the experience of living with PMDD and how well do doctors understand it? description: Women with PMDD reported severe suffering including suicidal thoughts and felt misunderstood by both doctors and family members. url: https://niyora.com/research/papers/autopercepcion-de-la-vivencia-de-su-afeccion-y-de-su-relacion-con-profesionales-2017/ --- - [Niyora](https://niyora.com/) - [Research](https://niyora.com/research/) - [Library](https://niyora.com/research/library/) - What is the experience of living with PMDD and how well do doctors understand it? Interview study, 2017 # What is the experience of living with PMDD and how well do doctors understand it? Women with PMDD reported severe suffering including suicidal thoughts and felt misunderstood by both doctors and family members. Early or limited evidence 15 women from different countries diagnosed with PMDD ## What they did Researchers conducted online interviews with 15 women from different countries who had been diagnosed with PMDD. Women described their experience living with the condition and their interactions with doctors and family. ## What they found Women reported that PMDD caused suicidal thoughts during the premenstrual phase. During this time, daily activities became impossible. Most said it took a long time to get diagnosed and that they felt misunderstood by both family and healthcare providers. Several women considered hysterectomy as a solution to their problems. ## What it means for you PMDD is a serious condition with major impact on life and mental health, and lack of understanding from doctors and family may worsen suffering. Main limitations include the very small sample size, lack of international representation, and recruitment through internet only. 15 women interviewed ## About the study Original title AUTOPERCEPCIÓN DE LA VIVENCIA DE SU AFECCIÓN Y DE SU RELACIÓN CON PROFESIONALES DE LA SALUD EN UNA MUESTRA DE MUJERES DIAGNOSTICADAS DE TRASTORNO DISFÓRICO PREMENSTRUAL Authors Agustín Quílez Clavero Journal Revistes Científiques de la University of Barcelona (University of Barcelona) Year 2017 Study design Interview study Participants 15 Open access Yes Read the paper [doi.org/10.1344/musas2017.vol2.num1.5](https://doi.org/10.1344/musas2017.vol2.num1.5) ## Topics [Premenstrual dysphoric disorder (PMDD)](https://niyora.com/research/topics/condition-pmdd/)[Low mood and depression](https://niyora.com/research/topics/symptom-depression-mood/)[Cognition, concentration and memory](https://niyora.com/research/topics/symptom-cognition/)[GnRH agonists and ovarian suppression](https://niyora.com/research/topics/treatment-gnrh/)[Surgical menopause](https://niyora.com/research/topics/treatment-surgery/)[Stigma, attitudes and culture](https://niyora.com/research/topics/life-area-stigma-culture/) Research tells you what helps on average. Niyora helps on the day it hits. Calm down, see it another way, and decide what to say, with a PMS and PMDD app built by a doctor. ## Related studies Interview study, 2017 What is it like to live with PMDD and how do you experience healthcare? Systematic review, 2026 Can digital tools help diagnose PMDD? Cohort study, 2023 Is PMDD a valid medical diagnosis? Review, 2018 What are the most effective treatments for premenstrual syndrome and PMDD? Review, 2015 What do we know about PMS and PMDD and how are they treated? Review, 2004 What is PMDD and how is it treated? Ask AI about this page Copy prompt ChatGPT ↗ Claude ↗ Perplexity ↗ Google AI Mode ↗ Grok ↗