---
title: Can women accurately tell if they have period-related migraines, or do they need to track them?
description: No. Women couldn't accurately tell if they had period migraines. Most needed to keep a daily headache diary for several cycles for accurate diagnosis.
url: https://niyora.com/research/papers/validation-of-diagnostic-ichd-3-criteria-for-menstrual-migraine-2022/
---

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- Can women accurately tell if they have period-related migraines, or do they need to track them?

Cohort study, 2022

# Can women accurately tell if they have period-related migraines, or do they need to track them?

No. Women couldn't accurately tell if they had period migraines. Most needed to keep a daily headache diary for several cycles for accurate diagnosis.

 Strong study design

607 premenopausal women with migraine

## What they did

A study of 607 women with migraine. Women reported whether they had period-related migraines, then kept detailed diaries of all headaches daily for several menstrual cycles. Researchers compared what women said to what their diaries showed and to standard medical diagnosis rules.

## What they found

Women couldn't accurately report whether they had period migraines from memory. About two-thirds of women in both those who self-reported and those who didn't actually met medical criteria in their diary, showing self-reports were unreliable. Nearly all women with period migraines also had migraines at other times of the cycle. Pure period-only migraines were extremely rare, less than 1%. Women with true period migraines had longer attacks (37-50% longer) and took more pain medication during their period.

## What it means for you

Women cannot reliably guess whether they have period migraines. A daily tracking diary is essential for accurate diagnosis. The main limit is that this study only included women who already had migraine.

607

Women studied

37-50%

Longer period-related migraine attacks

<1%

Pure period-only migraines

## About the study

Original title Validation of diagnostic ICHD-3 criteria for menstrual migraine Authors Verhagen IE, Spaink HA, van der Arend BW et al. Journal Cephalalgia : an international journal of headache Year 2022 Study design Cohort study Participants 607 What was tested Daily diary tracking to verify menstrual migraine diagnosis Open access Yes Read the paper [doi.org/10.1177/03331024221099031](https://doi.org/10.1177/03331024221099031) Original abstract

Objective: To assess validity of ICHD-3 diagnostic criteria for menstrual migraine. Methods: We performed a longitudinal E-diary study in premenopausal women with migraine. Menstrual migraine diagnosis was self-reported at baseline, and verified according to diary based ICHD-3 criteria and a previous proposed statistical model. Validity of self-reported menstrual migraine was compared to diary based diagnosis and statistical diagnosis. Test-retest reliability and concordance between both methods were determined. Clinical characteristics of perimenstrual and non-perimenstrual migraine attacks were compared in women with and without menstrual migraine. Results: We included 607 women. Both women who did and women who did not self-report to suffer from menstrual migraine fulfilled ICHD-3 criteria in the E-diary in two thirds of cases. Pure menstrual migraine was extremely rare (<1%). Concordance between statistical and diary based diagnosis was minimal (κ = 0.28, 95% CI:0.23-0.33). Women diagnosed with menstrual migraine showed 37-50% longer attack duration and increased triptan intake (OR 1.19-1.22, p < 0.001) during perimenstrual attacks. Conclusion: Self-reported menstrual migraine diagnosis has extremely poor accuracy. Two thirds of women suffer from menstrual migraine, independent of self-reports. Pure menstrual migraine is rare. Women with menstrual migraine have longer attack duration and increased triptan intake during perimenstrual attacks, in contrast to women without menstrual migraine. Prospective headache (E-)diaries are required for a menstrual migraine diagnosis, also in clinical practice.

Reproduced under CC-BY.

## Topics

[Premenstrual syndrome (PMS)](https://niyora.com/research/topics/condition-pms/)[Pain and headache](https://niyora.com/research/topics/symptom-pain/)[Migraine](https://niyora.com/research/topics/comorbidity-migraine/)

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