Survey study, 2018
Do autistic women experience menstruation differently from non-autistic women?
Yes. Autistic women reported that menstruation made autistic challenges worse, especially sensory sensitivity and difficulty controlling emotions and behavior. This seriously affected their lives.
What they did
123 autistic and 114 non-autistic women filled out an online survey about menstrual experiences. Researchers compared what the two groups reported.
What they found
While both groups reported some similar menstrual challenges, autistic women specifically reported that menstruation amplified sensory sensitivities and made emotion and behavior control harder. This cyclical worsening had a significant negative impact on daily life.
What it means for you
Autistic women may need different support during menstruation because menstruation makes autistic challenges worse. More research is needed to understand and help autistic women manage their cycles.
123
autistic women
114
non-autistic women
About the study
- Original title
- "Life is Much More Difficult to Manage During Periods": Autistic Experiences of Menstruation
- Authors
- Steward R, Crane L, Mairi Roy E et al.
- Journal
- Journal of autism and developmental disorders
- Year
- 2018
- Study design
- Survey study
- Participants
- 123
- What was tested
- None
- Open access
- Yes
- Read the paper
- doi.org/10.1007/s10803-018-3664-0
Original abstract
Although menarche and menstruation are perceived to be overwhelmingly negative events for developmentally-disabled women, women's health issues remain under-researched in autism. Here, we conducted a preliminary investigation of the experiences of post-menarcheal autistic (n = 123) and non-autistic (n = 114) respondents to a brief online survey. Although autistic respondents reported many overlapping issues and experiences with non-autistic respondents, they also highlighted distinct-and sometimes-distressing-issues relating to menstruation, especially a cyclical amplification of autistic-related challenges, including sensory differences and difficulties with regulating emotion and behavior, which had a significant, negative impact on their lives. These initial findings call for systematic research on the potential causes, correlates and consequences of menstrual-related problems in autistic individuals-across the spectrum and the lifespan.
Reproduced under CC-BY.
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