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Survey study, 2018

Do autistic women experience menstruation differently from non-autistic women?

Yes. Autistic women reported that menstruation made autistic challenges worse, especially sensory sensitivity and difficulty controlling emotions and behavior. This seriously affected their lives.

Early or limited evidence 123 autistic women and 114 non-autistic women

What they did

123 autistic and 114 non-autistic women filled out an online survey about menstrual experiences. Researchers compared what the two groups reported.

What they found

While both groups reported some similar menstrual challenges, autistic women specifically reported that menstruation amplified sensory sensitivities and made emotion and behavior control harder. This cyclical worsening had a significant negative impact on daily life.

What it means for you

Autistic women may need different support during menstruation because menstruation makes autistic challenges worse. More research is needed to understand and help autistic women manage their cycles.

123

autistic women

114

non-autistic women

About the study

Original title
"Life is Much More Difficult to Manage During Periods": Autistic Experiences of Menstruation
Authors
Steward R, Crane L, Mairi Roy E et al.
Journal
Journal of autism and developmental disorders
Year
2018
Study design
Survey study
Participants
123
What was tested
None
Open access
Yes
Original abstract

Although menarche and menstruation are perceived to be overwhelmingly negative events for developmentally-disabled women, women's health issues remain under-researched in autism. Here, we conducted a preliminary investigation of the experiences of post-menarcheal autistic (n = 123) and non-autistic (n = 114) respondents to a brief online survey. Although autistic respondents reported many overlapping issues and experiences with non-autistic respondents, they also highlighted distinct-and sometimes-distressing-issues relating to menstruation, especially a cyclical amplification of autistic-related challenges, including sensory differences and difficulties with regulating emotion and behavior, which had a significant, negative impact on their lives. These initial findings call for systematic research on the potential causes, correlates and consequences of menstrual-related problems in autistic individuals-across the spectrum and the lifespan.

Reproduced under CC-BY.

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